Intensive care is the unit where every means is deployed to maintain life and enable the patient to survive an acute illness. But unfortunately, in some cases, these means are not enough, and a decision may be taken to limit or stop these highly invasive measures. In such cases, the main aim of patient care is to ensure that the end of life is as gentle as possible.

Intensive care treatments and therapies are often a source of discomfort and anxiety: the first objective is to limit discomfort as much as possible, and prioritize care that can bring gentleness and (re)comfort. Treatments to reduce or eliminate pain and anxiety then take priority. Unpleasant treatments are systematically reassessed and eliminated wherever possible. In some cases, it may be advisable to remove as many of the devices and tubes that surround and equip the patient as possible.

Throughout the end-of-life phase, clinicians remain attentive to the patient's expressions, even when sedated, and to any reactions he or she may have. Please feel free to ask any questions you may have, and to express any concerns or observations you may have, in order to help the care team provide the best possible support for both you and the patient. Do not hesitate to tell the team if you wish to be called at any time of the day or night, or if you need to preserve rest periods.

Accompanying a patient at the end of his or her life, especially if he or she is unconscious, can be very destabilizing, as well as generating a great deal of sadness. Some relatives may feel the need to start anticipating administrative procedures, while others prefer to immerse themselves in the moment and enjoy the last moments they share. It's important for everyone to be able to deal with the situation as they see fit, without feeling judged or pressured by others. If you feel the need to talk, the team is always ready to listen. And don't hesitate to call on the department's psychologist, a valuable resource to help you deal with your emotions, difficult thoughts or family relationships.

At the end of life, you can perform rituals, bring in a representative of your and/or the patient's faith, talk to the patient, touch him or her, remain silent or sing, taking care not to disturb the surrounding rooms. Some people bring a few personal items to make the environment a little more familiar (scented stole, photos, soft music, etc.). Feel free to accompany the patient as you wish. If you have any doubts about what you can do, the team is at your disposal.

Please note that rituals performed in an intensive care room must never use flames or sparks (no candles, no incense) due to the ingress of medical gases. There is a real risk of explosion.